Don't confuse 'MySchool' for healthcare as innovation through open data

Professor Braithwaite says he doesn't oppose the system outright but he says the Government needs to give a much better explanation of how it would operate.

JEFFREY BRAITHWAITE: Is the data really reflecting performance of hospitals and services or is it a reflection of the different idiosyncrasies within the system and the complications within the system?

So it really does require a lot of smart thinking to present data in an effective way.

TIMOTHY MCDONALD: Do you suspect that when all is said and done a system of this nature simply might not be worth the money?

JEFFREY BRAITHWAITE: Well that's the big $64 question. No-one really knows.

You set up an authority, you hire staff, you have a lot of activity within the health system to gather data in accordance with the information system's requirements. You get a lot of people not only gathering the data but using it.

Do you get commensurate benefits in terms of health systems improvement? No-one really knows.

I wasn't particularly impressed by the MySchool effort and I wasn't impressed by the MyHosptials site when I heard about it late last year. However, lets not get confused about actionable and useful open data with publishing meaningless facts and figures, that are only likely to distort management priorities. I'm still waiting for a genuine Government 2.0 approach and innovative thinking in the public sector to be applied to this particular problem. And its not like there aren't models they can copy. I wonder what's stopping them?

MyHospitals (again) - is health care a journey or a transaction?

We are not providing real time information on how many parking lots are available or the current length of elective surgery waiting lists. For such information, they should contact the hospital or their doctor respectively,

I commented on MyHospitals the other day, but only just came across this related coverage.

My immediate thought in response to this quote from Alison Verhoeven, Senior Executive at Australian Institute of Health and Welfare (AIHW), is: but why not?

Don't factors like access to parking also affect the patient and the patient's carers, friends and family as they move through the health system? It leaves me wondering exactly who the 'My' in MyHospitals is.

How stories from real people can give us insight into why things happen

James is a Senior Business and Technology Consultant with Headshift Social Business Consultancy. Headshift is a leading international social business consultancy which helps organisations use smarter, simpler, social technologies to improve business performance, communication and customer engagement.

Both James and Professor Hasan gave examples of using IT in the health sector not just to collect vast amounts of statistical information to tell us what is happening but stories of real people that can give insight into why things happen.

James described the UK website ‘Patient Opinion’ where patient stories, the majority of which are positive are guiding new directions for the health system.

Follow up media release to my presentation at the University of Wollongong's SInet event. I was asked to focus on health care, so as well as Patient Opinion I also shared some Australian examples of how the Web is being used to help people with mental health issues to share their stories:

I also talked about some work that Headshift is involved with working with an organisation that is trying to improve how community services are being delivered to families, which also has an impact on their overall health and well-being. I explained how user-centred design can be complementary to the social innovation process.

Better Health IT can save lives, but can we actually build these better IT systems?

AN estimated 5000 deaths, two million GP and outpatient visits and 310,000 hospital admissions could be prevented every year if an effective IT system were rolled out - saving up to $7.6 billion in health costs annually, according to an analysis for release today.

I'm always a little cynical about this kind of number of crunching. I'm all for saving lives, but remain unconvinced that we can actually build the better IT systems they call for - the health industry doesn't have a great track record here after all.

However, listening to a news report on the radio today about a community protesting about the reduction of services at their rural hospital here in NSW today, I couldn't help thinking that we don't just need better technology, but better ways of managing complex systems like the public health system. We need global systems that allow local solutions, not one big homogeneous business process engine for health care.

This is because not everything in health (and other community service areas too) can be boiled down to a transaction, like medication or lab tests. Even if we can achieve it, improving health transactions with IT will only take us so far in improving patient outcomes (and ultimately saving tax payers money).

Denmark Leads the Way in Digital Care - NYTimes.com

Kurt Nielsen, the hospital’s director, says that while the doctors are not particularly adept at information technology, they have gradually embraced it. And it helps that the staff was involved in developing the innovations.

“My staff at the hospital is very, very satisfied,” he said. “We build these systems in an incremental way, and seek their input throughout.”

Talking of Social Business Design, I've written before about the need for new approaches to IT in healthcare. It sounds like the Danish have the right attitude more than anything else.

Taking Gov 2.0 beyond the iPhone-wielding, Twitter-tweeting community

In 2010, the Gov 2.0 community needs to think harder about how this movement will bridge economic disparity. Open data, open source, social media, transparency and collaboration are great, but look around the room at the people it serves and ask yourself, ‘how is this bridging the digital divide?’

I’m not saying Gov 2.0 isn’t accomplishing this on some scale. I’m saying there needs to be more of a conscious effort to do so. There needs to be consideration as to how this is catering to more than just the iPhone-wielding, Twitter-tweeting community, or we risk further alienating those who need government most.

An important point. Its something I've talked about back at the Public Spheres on Government 2.0 in Canberra and Sydney. However, its also important to remember that Government 2.0 doesn't need to save the world - it just need to contribute to help saving lots of little bits of the world in ways that really count. Its one reason why Patient Opinion continues to be one of my favourite case studies for meaningful Government 2.0.

The enterprise IT return on investment myth (and you think Enterprise 2.0 has issues?)

The problem "is mainly that computer systems are built for the accountants and managers and not built to help doctors, nurses and patients," the report's lead author, Dr. David Himmelstein, said in an interview with Computerworld.

Himmelstein, an associate professor at Harvard Medical School, said that in its current state, hospital computing might modestly improve the quality of health care processes, but it does not reduce overall administrative costs. "First, you spend $25 million dollars on the system itself and hire anywhere from a couple-dozen to a thousand people to run the system," he said. "And for doctors, generally, it increases time they spend [inputting data]."

Himmelstein said that only a handful of hospitals and clinics realized even modest savings and increased efficiency -- and those hospitals custom-built their systems after computer system architects conducted months of research.

This is a quote from an interview by Computerworld with one of the authors of a research paper published in the American Journal of Medicine on the impact of IT on the delivery of health care in the United States.

Their conclusion, based on the data: not much.

However, I think there are some hints here about the root cause of the problem:

  • Don't expect benefits from systems built as a means to an end;
  • Build systems to fit the people, not the other way around; and
  • Real ROI data takes time and effort to gather.

This is also all very interesting when you consider my recent posts about measuring the value of Enterprise 2.0 versus the clear and obvious bottom line benefits of three-letter acronym systems... because it sounds like these health information systems were sold on the same sort of 'hard' ROI numbers.

Hat tip to Nicholas Carr.

The Australian health sector needs a whole new approach to information technology, not just open source

OPEN source software offers one cure for clinical system implementation woes, as authorities struggle to find solutions that meet all medical requirements, a leading health informatics researcher says.

...

Rather than the all-in, big-bang approach of a full CIS (clinical information system) implementation, an open, standards-based approach would allow a more incremental, lower risk approach, with organic expansion based on lessons learnt.

I think the mixing of terminology around open source software and open standards is a little confusing in the piece. However, what is clear is that complex environments, like we find in health care, need new approaches to information technology to avoid the mistakes of the past. This includes open source software, open standards, etc but also new approaches to procurement, support, solution design and project management. Just focusing on open source software itself is missing the bigger picture of the challenge. And what about the hardware too?